An insight into the participation of rare disease patients in research
An infographic showing the results of the survey on the participation of rare disease patients in research. The data from this survey have been organised into infographics showing the results from across Europe in multiple languages and by disease grouping.The survey was carried out via Rare Barometer Voices, the EURORDIS survey initiative
Downloads
- Rare disease patients’ participation in research survey_report (English)
- Rare disease patients’ participation in research survey_infographic_English (English)
- Rare disease patients’ participation in research survey_infographic_Bulgarian (Bulgarian)
- Rare disease patients’ participation in research survey_infographic_Croatian (Croatian)
- Rare disease patients’ participation in research survey_infographic_Czech (Czech)
- Rare disease patients’ participation in research survey_infographic_Danish (Danish)
- Rare disease patients’ participation in research survey_infographic_Dutch (Dutch)
- Rare disease patients’ participation in research survey_infographic_Estonian (Estonian)
- Rare disease patients’ participation in research survey_infographic_Finnish (Finnish)
- Rare disease patients’ participation in research survey_infographic_French (French)
- Rare disease patients’ participation in research survey_infographic_German (German)
- Rare disease patients’ participation in research survey_infographic_Greek (Greek)
- Rare disease patients’ participation in research survey_infographic_Hungarian (Hungarian)
- Rare disease patients’ participation in research survey_infographic_Italian (Italian)
- Rare disease patients’ participation in research survey_infographic_Latvian (Latvian)
- Rare disease patients’ participation in research survey_infographic_Lithuanian (Lithuanian)
- Rare disease patients’ participation in research survey_infographic_Polish (Polish)
- Rare disease patients’ participation in research survey_infographic_Portuguese (Portuguese)
- Rare disease patients’ participation in research survey_infographic_Romanian (Romanian)
- Rare disease patients’ participation in research survey_infographic_Russian (Russian)
- Rare disease patients’ participation in research survey_infographic_Slovak (Slovak)
- Rare disease patients’ participation in research survey_infographic_Slovenian (Slovenian)
- Rare disease patients’ participation in research survey_infographic_Spanish (Spanish)
- Rare disease patients’ participation in research survey_infographic_Swedish (Swedish)
- Rare disease patients’ participation in research survey_infographic_Czech (Czech)
- Rare disease patients’ participation in research survey_infographic_Rare bone diseases (English)
- Rare disease patients’ participation in research survey_infographic_Rare cancers (English)
- Rare disease patients’ participation in research survey_infographic_Rare epilepsies (English)
- Rare disease patients’ participation in research survey_infographic_Rare eye diseases (English)
- Rare disease patients’ participation in research survey_infographic_Rare eye diseases_French (French)
- Rare disease patients’ participation in research survey_infographic_Pulmonary hypertension (English)
- Rare disease patients’ participation in research survey_infographic_Rare respiratory diseases (English)