This programme is owned independently by Eurordis and is a non-profit initiative; no commercial use of your details will be made at any time. The programme is guided by a EURORDIS Steering Committee and is supported by the Rare Barometer Programme Advisory Committee Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex ea commodo consequat.
Eurordis - Rare Disease Europe
- Who we are
- Our priorities
- Information & support
- Get information
- What is a rare disease?
- On your disease
- Find Information on Treatments
- List of the marketing authorisations
- Compassionate use
- Pharmacovigilance
- To advocate
- Rare disease personal stories
- Rare diseases in the arts
- Find support
- Find a patient organisation
- Rare disease help lines
- Find a specialised Social Service
- Find medical expertise
- Find a community
- Get involved