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This programme is owned independently by Eurordis and is a non-profit initiative; no commercial use of your details will be made at any time. The programme is guided by a EURORDIS Steering Committee and is supported by the Rare Barometer Programme Advisory Committee Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex ea commodo consequat.

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