We regularly publish news articles and press releases on the latest developments in rare disease policy and EURORDIS activities. Search for the latest new from EURORDIS below. We encourage you to sign up to our monthly eNews to stay up to date with what is happening in the rare disease field both in Europe and globally. Receive updates direct to your inbox and follow us on Twitter, Facebook, LinkedIn and Instagram!
For media enquires please contact Stanislav Ostapenko, Communications Manager: firstname.lastname@example.org
Czech Deputy Health Minister calls for a European Union Action Plan on rare diseases, as Czechia takes over the EU Presidency
Date: July 1, 2022More information
Deputy Minister of Health of Ukraine calls for “humanitarian and financial support from pharmaceutical companies and colleagues from EURORDIS” to support Ukrainians with rare diseases in the years to come
Date: June 28, 2022More information