Skip to content
Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors

Contact us

Find the answer to your question

Do you have a question around a specific EURORDIS activity or area of rare disease policy?
Please search and contact the relevant member of the EURORDIS team.

If you are still looking for an answer to your question you can:

Media enquiries

Please contact Stanislav Ostapenko, Communications Senior Manager:

Read our latest press releases/ news and our position papers.

Job vacancies

Learn more about working at EURORDIS.

Our offices


EURORDIS-Rare Diseases Europe,
Plateforme Maladies Rares,
96, rue Didot,
75014 Paris,
Tel: +33 1
Fax: +33 1


EURORDIS-Rare Diseases Europe,
Fondation Universitaire,
Rue d’Egmont 11,
1000 Brussels,
Tel: +32 2 882 77 21


EURORDIS-Rare Diseases Europe,
Recinte Modernista Sant Pau,
Pabellón de Santa Apolonia,
Calle Sant Antoni Mª Claret 167,
08025 Barcelona,

To visit one of our offices


Bus lines: 58, 62,
Metro Station: Plaisance or Porte de Vanves,
Tramway Station: Didot (T3 line)

The EURORDIS offices are located at the entrance of the former hospital compound of the Hôpital Broussais. The hospital has 2 entrances. The main gate at 96, rue Didot may be closed in which case use the secondary entrance at 96 bis rue Didot. The offices are located in “Bâtiment Maurice Raynaud” “Secteur Bleu” – Entrance 8 on the 1st floor


Metro Station: line 2, line 6: Porte de Namur,
Bus lines: 54, 71, 34, 64, 80 (Porte de Namur) , 34, 64, 80, 95, 27 (Trône), 12, 21 (Luxembourg)


Bus lines: H8, 19, 20, 45, 47, 92, 192,
Metro Station: line 5: Sant Pau | Dois de Maig

EURORDIS cannot respond to questions concerning the medical aspects of a rare disease. EURORDIS does not employ qualified medical personnel or information specialists to give medical advice, diagnose illness, or offer referrals. We strongly recommend that you seek the advice of your health care provider with questions regarding medical care. If you need help finding a patient group for your disease please search here or find sources of information on your disease here.

The official language at EURORDIS is English. EURORDIS staff can also communicate in French, German, Italian, Spanish and Portuguese. For questions in other languages, please contact a National Alliance representing a country in which your language is spoken

This site is registered on as a development site.