EURORDIS member webinar – consultation on position paper on access to rare disease medicines
https://www.youtube.com/watch?v=C5rrFnOm-gc
Eurordis - Rare Disease Europe
- Who we are
- Our priorities
- Information & support
- Get information
- What is a rare disease?
- On your disease
- Find Information on Treatments
- List of the marketing authorisations
- Compassionate use
- Pharmacovigilance
- To advocate
- Rare disease personal stories
- Rare diseases in the arts
- Find support
- Find a patient organisation
- Rare disease help lines
- Find a specialised Social Service
- Find medical expertise
- Find a community
- Get involved