Brochure de présentation d’EURORDIS
Brochure de présentation d’EURORDIS : La voix des patients atteints de maladies rares en Europe
Eurordis - Rare Disease Europe
- Who we are
- Our priorities
- Information & support
- Get information
- What is a rare disease?
- On your disease
- Find Information on Treatments
- List of the marketing authorisations
- Compassionate use
- Pharmacovigilance
- To advocate
- Rare disease personal stories
- Rare diseases in the arts
- Find support
- Find a patient organisation
- Rare disease help lines
- Find a specialised Social Service
- Find medical expertise
- Find a community
- Get involved