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Eurordis - Rare Disease Europe

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Factsheets and infographics

Why we need European action on rare disease!Why we need European action on rare disease!Mai 2021Read More
Community Advisory Boards – Early SuccessesCommunity Advisory Boards – Early SuccessesJanuar 2021Read More
How has COVID-19 impacted people with rare diseases?How has COVID-19 impacted people with rare diseases?Oktober 2020Read More
Solve-RD infographic on the patient journey to diagnosisSolve-RD infographic on the patient journey to diagnosisJuli 2020Read More
Results of the H-Care survey pilotResults of the H-Care survey pilotFebruar 2020Read More
Work-life balance Directive fact sheetWork-life balance Directive fact sheetJuli 2019Read More
European Patient Advocacy Groups (ePAGs)European Patient Advocacy Groups (ePAGs)Juli 2019Read More
Share and protect our health data!Share and protect our health data!Mai 2019Read More
An insight into the participation of rare disease patients in researchAn insight into the participation of rare disease patients in researchNovember 2018Read More
Resource Centres for Rare DiseasesResource Centres for Rare DiseasesMai 2013Read More
Adapted Housing Services for Rare DiseasesMai 2013Read More
Centres of ExpertiseCentres of ExpertiseDezember 2012Read More
National help lines for rare diseasesNational help lines for rare diseasesDezember 2012Read More
European Reference Networks of Centres of ExpertiseEuropean Reference Networks of Centres of ExpertiseDezember 2012Read More
Rare Disease Patient RegistriesRare Disease Patient RegistriesFebruar 2011Read More
OrphanetOrphanetNovember 2010Read More
Therapeutic Recreation Programmes for Rare DiseasesTherapeutic Recreation Programmes for Rare DiseasesNovember 2010Read More
The European Network of Rare Disease Help LinesThe European Network of Rare Disease Help LinesJuni 2010Read More
Rare disease patient groups in the European UnionRare disease patient groups in the European UnionJuni 2010Read More
Respite Care Services for Rare DiseasesRespite Care Services for Rare DiseasesJuni 2010Read More
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