Skip to content
[wpdreams_ajaxsearchlite]

EURORDIS General Assembly

The EURORDIS General Assembly is an annual meeting where full members of EURORDIS-Rare Diseases Europe convene to discuss and decide on key organisational matters. During this assembly, members elect candidates to the Board of Directors, review and approve the Activity and Financial Reports for the previous year, and endorse the Work Programme for the upcoming year.

In addition to these formal proceedings, the General Assembly serves as a platform for members to engage in strategic discussions about the organisation’s direction and initiatives. Notably, in 2021, members adopted a comprehensive 2021–2030 strategy during the General Assembly, outlining six priority areas aimed at improving the lives of people with rare diseases across Europe.

EURORDIS General Assembly (GA) 2025

The annual EURORDIS General Assembly will take place online on 15 May (from 09.30 to 12.30 am CET). During the event, our full members will elect candidates to our Board of Directors and vote on the approval of the 2024 Activity Report, 2024 Financial Report, and 2025 Work Programme.

Contact person

Anja Helm,
Senior Manager of Relations with Patient Organisations



Anja Helm