Webinar: Results of the Rare Barometer Survey – The daily life of people living with rare diseases
January 2025
We are excited to launch the results from the latest Rare Barometer survey on the social impact of living with a rare disease!
Close to 10,500 people participated in the survey worldwide, and almost 9,600 in Europe. The results will include key figures on disability among people with rare diseases and will highlight the barriers that prevent people living with a rare disease from accessing adequate support and equal opportunities to live to their full potential, as well as having their disabilities recognised.
? Webinar: Results of the Rare Barometer Survey – The daily life of people living with rare diseases
➡️ Register now!
?️ 13 February 2025
⏰ 17:00 to 18:30 CET
Concept Note