ePAG ERNICA Best Practice - EURORDIS

About EURORDIS

History

Team

Initiatives

Projects & Partnerships

Governance Charts & External Representation

Board of Directors

Strategy & Impact

Funding

Annual Reports, Statutes & By-Laws

Members

National Alliances

European Federations

Volunteers

Rare Disease Policy

Setting the Agenda

Mobilising Policymakers

Engaging the Community

European Elections 2024

European Action Plan

Diagnosis

Research

Holistic Care

Treatments

Data and Digital Health

Cross-cutting Areas

Mental Health & Wellbeing

Newborn Screening

European Reference Networks

Rare Cancers

Integrated Care

About Rare Diseases

What is a Rare Disease?

Information on your Rare Disease

Rare Diseases in the Arts

Personal Stories

Survey Design Toolkit for Patient Organisations

About Medicines For Rare Diseases

FAQ: Rare Disease Medicines

List of the Marketing Authorisations

Getting Involved in Medicine Development

Connect with a Patient Organisation

Contact Rare Disease Helplines

Find Medical Expertise

Become a Member

Become an ePAG Advocate

Join the EURORDIS Round Table of Companies

Support EURORDIS

Careers

Join Our Activities

EURORDIS Open Academy

Rare Disease Week

Rare Barometer

Rare Disease Day

Attend Our Events

Black Pearl Awards

European Conference on Rare Diseases (ECRD)

Membership Meeting

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July 2019

ePAG ERNICA Best Practice

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