EURORDIS responds to ENVI MEPs’ debate on EU pharmaceutical package
7 November, Brussels – EURORDIS-Rare Diseases Europe has welcomed contributions delivered by MEPs this morning at the European Parliament Environment, Public Health and Food Safety (ENVI) Committee’s debate on revisions to the EU’s general pharmaceutical legislation.
This morning, members of the ENVI Committee discussed the ‘pharmaceutical package’ reform proposals, examining draft reports by MEP Tiemo Wölken (S&D, Germany) on the Regulation and MEP Pernille Weiss (EPP, Denmark) on the Directive.
Responding to remarks delivered during the ENVI Committee debate, as well as specific proposals of amendments to the proposed reforms, Simone Boselli, Public Affairs Director at EURORDIS, said:
Text Name
Download the PDF
About EURORDIS-Rare Diseases Europe
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1,000 rare disease organisations from 74 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. By connecting people, families and rare disease groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies and services.
Contact
Julien Poulain
Communications Manager
EURORDIS-Rare Diseases Europe
+33 6 42 98 14 32