Eurordis - Rare Disease Europe

This document has been created to help you prepare and deliver your message to an MEP during Rare Disease Week (22- 26 February 2021). 

Please feel free to adapt your message to address the specific needs in your country or disease area. 

This document includes:

• Introducing yourself 
• Things to remember going into the meeting 
• Key message for your MEP: we need a new generation of policies for rare diseases 
• Key ask for your MEP: join the Network of Parliamentary Advocates for Rare Diseases 
• Customising your message 
• The Rare 2030 recommendations