Health innovation among proposals in Draghi’s competitiveness report
9 September 2024, Brussels – EURORDIS–Rare Diseases Europe welcomes the publication of Mario Draghi’s report on the future of European competitiveness, presented to the European Commission and to which our organisation was invited to contribute. The report addresses several key areas crucial to the rare disease community, particularly in pharmaceutical innovation, healthcare access, and research.
As the organisation representing people living with a rare disease across Europe, EURORDIS is both pleased and grateful to have been consulted during the drafting process, ensuring that the voices of those impacted by rare diseases were heard and considered throughout the report’s development.
Presenting his report, former Italian Prime Minister and European Central Bank President Mario Draghi emphasised the need for “radical change” in the EU, citing the fierce competition the bloc faces from both China and the United States.
Responding to the report, Virginie Bros-Facer, Chief Executive of EURORDIS, stated:
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EURORDIS will conduct a more comprehensive review of the report in the coming days to evaluate how well it meets the needs of rare disease patients
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About EURORDIS-Rare Diseases Europe
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1,000 rare disease organisations from 74 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. By connecting people, families, and rare disease groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies, and services.
Contact
Julien Poulain
Communications Manager
EURORDIS-Rare Diseases Europe
Julien.poulain@eurordis.org
+33 6 42 98 14 32