Eurordis - Rare Disease Europe

Below are listed articles and PDF documents relating to the Council of European Disease Federation, including:

CEF Workshops:

Workshop 14, 9-10 November 2021, online

• Agenda 
• Participants list 

Presentations

• Revision of the general pharmaceutical legislation – Eliciting comment form NAs and EFs for the public consultation, Simone Boselli 

• Revision of the general pharmaceutical legislation – Focus on unmet needs, access to treatment, Table of Negotiation and EU Fund, Simone Boselli

• UN Resolution – What it means? What is next? Clara Hervas 

• Including rare cancers in Europe’s Beating Cancer Plan, Ariane Weinman 

• Covid-19, François Houyez 

• New CABs programme, François Houyez 

• A new training by EURORDIS on how patients can take part in HTA, Matteo Scarabelli 

• How can federations prepare themselves for a new pilot at the EMA, when the evaluation of a new medicine starts? François Houyez 

• Access to orphan medicinal products: where do we stand, Simone Boselli 

• Update on Newborn Screening, Valentina Bottarelli, Gulcin Gumus

Workshop 13, 26-27 November 2020, online

Workshop 12, Brussels, Belgium, 08 November 2019

Workshop 11, Paris, France 11-12 December 2018

Workshop 10, Paris, France 26-27 October 2017

Workshop 9, Paris, France 3-4 Nov 2016

Workshop 8 – Paris, 28-29 oct. 2015

Workshop 7 – Paris, Registry training 14-15 oct. 2014

Workshop 6 – Paris, France 29-30 October 2013

Workshop 5 – Paris, France 30-31 October 2012

Workshop 4 – Paris, France 30 June – 1 July 2011

Workshop 3 – Paris, France 1-2 July 2010

Workshop 2 – Brussels, Belgium 3 December 2009

Workshop 1 – Athens, Greece 7 May 2009