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Eurordis - Rare Disease Europe

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Press releases

Press release

EURORDIS receives a grant from Boston Scientific Foundation Europe to support the ‘Building Good Practices’ ePAG Webinar Series

Date: January 26, 2022

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Press release

EURORDIS-Rare Diseases Europe welcomes France’s commitment to Europe’s Action Plan for Rare Diseases during its Presidency of the Council of the European Union

Date: January 4, 2022

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First-ever United Nations Resolution to Increase Visibility for the 300 Million Persons Living with a Rare Disease

Date: December 16, 2021

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Press release

Rare Adult Cancers Included in the Final Report of the European Parliament’s Special Committee on Beating Cancer

Date: December 10, 2021

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Rare disease community calls for additional doses of COVID-19 vaccine to protect the most vulnerable and extra measures to vaccinate more European citizens

Date: October 13, 2021

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EURORDIS-Rare Diseases Europe urges governments across Europe and the world to make the third dose a priority for people with certain immune conditions

Date: July 22, 2021

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EURORDIS-Rare Diseases Europe welcomes the agreement on the Proposal for a Regulation on European Cooperation in Health Technology Assessment

Date: June 22, 2021

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EURORDIS-Rare Diseases Europe addresses the concerns of its members on the supply of COVID-19 vaccines and other medicinal products

Date: June 11, 2021

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EURORDIS-Rare Diseases Europe calls for a European Union action plan on rare diseases to meet unmet needs by 2030

Date: June 1, 2021

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10th Black Pearl Awards ceremony united people from across the globe to honour 18 exceptional Awardees

Date: April 23, 2021

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EURORDIS-Rare Diseases Europe calls for more equitable access to COVID-19 vaccines for vulnerable populations in Europe and worldwide

Date: April 23, 2021

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EU Disability Strategy to improve the lives of people living with a rare disease

Date: March 24, 2021

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