Skip to content

Eurordis - Rare Disease Europe

About Us

Our Governance

Our Network

Rare Disease Policy

Priority Areas

Cross-cutting Areas

About Rare Diseases

About Medicines For Rare Diseases

Find Support

With EURORDIS

Join Our Activities

Attend Our Events

[wpdreams_ajaxsearchlite]
Newsroom
Multimedia
Events
Members
Resources
Contact us
Accessibility Options
Donate

Press release

Press release

EURORDIS welcomes role in major new research partnership

Date: September 12, 2024

More information
Press release

Health innovation among proposals in Draghi’s competitiveness report

Date: September 9, 2024

More information
Press release

Open Letter signed by thousands across rare disease community presented to European Commission 

Date: July 23, 2024

More information
Press release

EURORDIS welcomes EPSCO call for inclusion of health priorities in EU Strategic Agenda

Date: June 21, 2024

More information
Press release

EURORDIS: EU4Health must recognise added value of EU action on rare diseases

Date: June 19, 2024

More information
Press release

EURORDIS Welcomes New MEPs, Stressing Urgency of Health on EU Agenda

Date: June 10, 2024

More information
Press release

EURORDIS Reacts to Translarna Review: Trust in Scientific Evidence

Date: May 31, 2024

More information
Press release

Major survey reveals lengthy diagnostic delays for rare disease patients 

Date: May 16, 2024

More information
Press release

Major survey reveals rare disease community’s overwhelming support for screening at birth

Date: May 7, 2024

More information
Press release

EURORDIS responds to European Parliament plenary vote on European Disability Card

Date: April 25, 2024

More information
Press release

EURORDIS responds to European Parliament adoption of legislation on health data space 

Date: April 24, 2024

More information
Press release

EURORDIS welcomes European Parliament plenary vote on pharmaceutical package 

Date: April 10, 2024

More information