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Eurordis - Rare Disease Europe

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Press releases

Press release

Czech Deputy Health Minister calls for a European Union Action Plan on rare diseases, as Czechia takes over the EU Presidency

Date: July 1, 2022

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Deputy Minister of Health of Ukraine calls for “humanitarian and financial support from pharmaceutical companies and colleagues from EURORDIS” to support Ukrainians with rare diseases in the years to come

Date: June 28, 2022

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Largest patient-led conference kicks off with a call for a coordinated EU strategy on rare diseases

Date: June 27, 2022

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Virginie Hivert, Therapeutic Development Director at EURORDIS, appointed to the Management Board of the European Medicines Agency

Date: June 16, 2022

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EURORDIS-Rare Diseases Europe publishes a Joint Statement with EFPIA on proposals to improve patient access to medicines

Date: June 15, 2022

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EURORDIS and Airbnb.org team up to support people living with a rare disease fleeing the war in Ukraine

Date: April 11, 2022

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New global Rare Barometer survey on the journey to diagnosis for people living with a rare disease

Date: March 21, 2022

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Uniting for the two million Ukrainians living with a rare disease

Date: March 16, 2022

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EURORDIS-Rare Diseases Europe calls on the European Commission for decisive action on rare diseases

Date: February 28, 2022

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EURORDIS-Rare Diseases Europe calls on the international community to prepare for a potential crisis and address the challenges of people living with a rare disease in Ukraine

Date: February 24, 2022

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EURORDIS announced the recipients of the 2022 Black Pearl Awards

Date: February 16, 2022

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Rare Diseases in the global spotlight on 28 February

Date: February 16, 2022

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