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Press release

Press release

Patient organisations warn against EU rollback on patient involvement in medicines regulation

Date: March 10, 2025

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No More Waiting: MEPs insist on action at Rare Disease Day event

Date: March 5, 2025

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Launch of the European Parliament Intergroup on Cancer & Rare Diseases: A new forum for collaboration and action

Date: March 4, 2025

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Black Pearl Awards 2025: EURORDIS honours changemakers of the rare disease community

Date: February 24, 2025

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EURORDIS Rare Barometer finds major barriers to disability recognition and social participationĀ 

Date: February 13, 2025

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European Parliament establishes new Intergroup on Cancer & Rare Diseases

Date: February 3, 2025

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EU conference prepares for comprehensive European action on rare diseases

Date: November 29, 2024

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EURORDIS welcomes the milestone 5-year evaluations of the European Reference Networks

Date: November 29, 2024

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EURORDIS congratulates new European Commissioners on their confirmation

Date: November 27, 2024

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EURORDIS: EESC right to reaffirm call for European Action Plan for Rare Diseases

Date: October 23, 2024

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EURORDIS welcomes European Parliament’s defence of investment in EU health projects

Date: October 23, 2024

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EURORDIS: Greater focus needed on rare diseases in EU health mandate

Date: September 17, 2024

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