Latest News View all news EURORDIS responds to European Parliament plenary vote on European Disability Card Press release EURORDIS welcomes the European Parliament’s approval of the provisional agreement on the European Disability Card. EURORDIS responds to European Parliament adoption of legislation on health data space Press release EURORDIS welcomes the newly adopted position of the European Parliament on the European Health Data Space proposal. In Conversation: Virginie Bros-Facer and Avril Daly on the future at EURORDIS News EURORDIS' new CEO, Virginie Bros-Facer, and President Avril Daly catch up on Virginie's first month at EURORDIS. Charting the Future: Valentina Bottarelli on Shaping an EU Action Plan for Rare Diseases News Valentina Bottarelli discusses the need for a unified EU Action Plan for Rare Diseases, with the EU elections on the... JARDIN 101: The Purpose. The Plan. The Potential. News We explain the EU Joint Action on Integrating ERNs into National Health Systems (JARDIN) Sharon Ashton: Shaping the future of rare disease policy at the ECRD Staff Blog Sharon Ashton, our Events and Open Academy Director, discusses the unmissable opportunities at our upcoming ECRD. EURORDIS welcomes European Parliament plenary vote on pharmaceutical package Press release EURORDIS responds to latest vote on pharmaceutical legislation reforms. EURORDIS: Compromise amendments on pharmaceutical reforms are a ‘meaningful step’ forward Press release EURORDIS responds to the result of voting in the European Parliament's ENVI Committee. EURORDIS welcomes provisional agreement on the European Health Data Space Press release EURORDIS responds to the latest agreement between the Council of the EU and the European Parliament on the European Health... #ActRare2024: What progress must the EU make on rare diseases? News We take a look at the eight key asks of our pre-EU elections campaign. Keep up to date with the latest news, events, and campaigns from EURORDIS Subscribe
