Latest News View all news Fundación Síndrome de Dravet opens laboratory to promote research into condition Member's Comment This Member Comment article was shared with EURORDIS by our member organisation, the Fundación Síndrome de Dravet. Solène Jouan: Draghi’s plan for Europe to regain its edge in health innovation Staff Blog Our EU Public Affairs Officer discusses Mario Draghi's ideas to make Europe's pharmaceutical sector more competitive. EURORDIS: Greater focus needed on rare diseases in EU health mandate Press release EURORDIS responds to the unveiling of new European Commission portfolios. How newborn screening is changing lives in Ukraine News Despite the ongoing challenges of war, newborn screening continues to play a vital role in Ukraine’s healthcare system. Applications launch for Open Academy Schools 2025 News The 2025 Schools will empower rare disease advocates with the skills, knowledge, and networks they need. Claudia Fuchs: The potential of drug repurposing in rare diseases Staff Blog Claudia Fuchs, our Drug Repurposing Projects Senior Manager, is inviting manuscripts for a special journal issue on drug repurposing. EURORDIS welcomes role in major new research partnership Press release EURORDIS responds to the launch of the European Rare Diseases Research Alliance (ERDERA). Health innovation among proposals in Draghi’s competitiveness report Press release EURORDIS responds to the proposals outlined in Mario Draghi's report on the future of competitiveness in the EU. EURORDIS Open Academy expands language offerings News The EURORDIS Open Academy is proud to announce the expansion of its e-learning courses to offer translated courses in five... Open Letter signed by thousands across rare disease community presented to European Commission Press release EURORDIS presents Open Letter to European Commissioner Stella Kyriakides. Keep up to date with the latest news, events, and campaigns from EURORDIS Subscribe
